Thursday, February 26, 2009
Surgery over - good outcome
Donna's surgery is over and the doctor said it was successful. She is still in recovery and doing fine. We anticipate a few days in ICU and then on to the Step-Down room as planned.
Surgery today
Hi,
This is Donna. I'm just laying around waiting to go to surgery. I'd say, we are going to "get er done" today. We are on our way!
Darlene says-
I'm sitting here next to Donna (with Louie) helping to entertain her until this morning's surgery. She is having "scheduled" surgery to repair a lymph node this morning and the expectation is that this will fix things up. She is almost through with the antibiotics and getting closer and closer to coming home. After this surgery, she will return to ICU for a day or two, then on to step-down and next HOME ! This surgery should take care of the fluid that has continued to build up in the heart and lungs. It's fairly simply and should only take about 30-45 minutes. We'll let you know more later.
This is Donna. I'm just laying around waiting to go to surgery. I'd say, we are going to "get er done" today. We are on our way!
Darlene says-
I'm sitting here next to Donna (with Louie) helping to entertain her until this morning's surgery. She is having "scheduled" surgery to repair a lymph node this morning and the expectation is that this will fix things up. She is almost through with the antibiotics and getting closer and closer to coming home. After this surgery, she will return to ICU for a day or two, then on to step-down and next HOME ! This surgery should take care of the fluid that has continued to build up in the heart and lungs. It's fairly simply and should only take about 30-45 minutes. We'll let you know more later.
Wednesday, February 25, 2009
Life in ICU
The nurses are amazing and wonderful as Donna continues to heal in ICU. She is "unattached" for the most part, it won't sound like it but honestly it is better than it was - there is only a blood pressure cuff, heart monitor and occasional hook up to an IV for those much needed antibiotics. She still has the drain tube in her heart and fluid continues to drain. The doctors have narrowed down the causes and we will be able to let you know the next step, later today. For now we just wanted to say that Donna is resting comfortably although growing tired of being sick.
I wanted to take a minute to tell all of you how much we appreciate your support. Every day brings cards, photos, gift cards, fruit baskets and more and it has been so appreciated. I know most of you must feel like this has gone on an awful long time, as do we - imagine how Donna is feeling. Each day we take cards to her and tell her how much everyone is praying and cheering for her recovery to good health. It really means more than you can imagine. Somedays she is so overwhelmed by all your love and care and conern that she cries and they are tears of happiness and greatfulness and a little sadness because she misses you all so much. She is still strong and willing to work hard to get well and certain that she is going to beat this awful thing, as we all are! One day when Donna is well and strong again, I am going to sit down and write to each person to let them know how thankful we are for them continuing support. For now we just want to say - Thank you everyone!
I wanted to take a minute to tell all of you how much we appreciate your support. Every day brings cards, photos, gift cards, fruit baskets and more and it has been so appreciated. I know most of you must feel like this has gone on an awful long time, as do we - imagine how Donna is feeling. Each day we take cards to her and tell her how much everyone is praying and cheering for her recovery to good health. It really means more than you can imagine. Somedays she is so overwhelmed by all your love and care and conern that she cries and they are tears of happiness and greatfulness and a little sadness because she misses you all so much. She is still strong and willing to work hard to get well and certain that she is going to beat this awful thing, as we all are! One day when Donna is well and strong again, I am going to sit down and write to each person to let them know how thankful we are for them continuing support. For now we just want to say - Thank you everyone!
Monday, February 23, 2009
Procedure to drain lung over
Donna came back from having the fluid removed from her lung, there was 1300CC's, or about the equivalent of 5 1/2 cups. Apparently it has a very similar look to the fluid that was around her heart - milky is how they describe it. The fluid from the heart has still not shown to be infected.
Donna did not have a good time when they drained her lung, apparently it was very painful and the technician was not gentle or kind during the procedure. She was able to complain (loudly) to the pulmonary doctor and he apologized profusely.
The prediction is that Donna will remain in the CVICU for a little while longer - number of days to be determined. Louie and my folks are with Donna today. Kirsten has left to return home.
Donna is comfortable now, maybe she will get to take a nap for a while.
Donna did not have a good time when they drained her lung, apparently it was very painful and the technician was not gentle or kind during the procedure. She was able to complain (loudly) to the pulmonary doctor and he apologized profusely.
The prediction is that Donna will remain in the CVICU for a little while longer - number of days to be determined. Louie and my folks are with Donna today. Kirsten has left to return home.
Donna is comfortable now, maybe she will get to take a nap for a while.
Today starts week SIX
The plan over the weekend was for Donna to improve, get up start walking a bit, move to a new room and so on. This all sounded good but didn't quite go as planned, it was postponed until today. Most of the doctors were in agreement that she could be moved to a "Step-down" room, so out of Intensive Care, except the heart doctors. They said no way. She still has the drainage tube and it is draining fluid from her heart. They don't want her to walk or move around until that drainage tube is removed, they don't want to remove the tube until they know what the fluid consists of and it continues to drain. They have tried a few theories to test the fluid and so far we have had no conclusions.
So far, the plan today is to drain the fluid from her lung (it's the right one). However, this morning she has been nauseated and says "I just don't feel that great". Louie and Kirsten are with her and we'll see how the day progresses.
So far, the plan today is to drain the fluid from her lung (it's the right one). However, this morning she has been nauseated and says "I just don't feel that great". Louie and Kirsten are with her and we'll see how the day progresses.
Saturday, February 21, 2009
Saturday night and all is well
Last night (Friday) the nurse came in and got Donna out of bed, for the first time since the most recent surgery. She didn't have far to go, but to her it was a big deal. She kept saying she was "nervous" and she had good reason. For the three days before surgery her back had been causing a lot of pain so she was very cautious and concerned that making just the smallest wrong move was going to make that pain return. Good news - she made it to the chair, with no pain. She was able to sit up, eat dinner and enjoy the time with Louie.
Saturday was cold and rainy (I seem to be saying that a lot lately, wish winter would hurry up and end !). Donna was entertained by Louie, Kirsten, her Mom and Dad and Joseph and I. After two different times of sitting up in the chair for several hours each time, she had two good naps and was in fine form tonight. With a little help from her new friends (Dilaudid and Percocet) she was feeling no pain. Her back has begun to hurt again but they are keeping it under control with a little pain medication. (That's the infection causing the pain and of course the treatment is antibiotics and more antibiotics.)
Starting today, during the day she is off the oxygen and must only use it when she sleeps. There is still fluid in her lungs so she is having a bit of difficulty taking good deep breaths. If this doesn't clear up by Monday, they will drain the fluid. Today there is also a new theory being tested about the fluid that continues to drain from her heart, we are waiting for the results. The doctors still believe this fluid is most likely infected but so far it has not been confirmed. Of course, weekends in the hospital are a bit more relaxed than during the week. Not a lot happens, not a lot of information is forthcoming. That's okay, it's a good time for Donna to rest, eat, visit and regain her strength !
Saturday was cold and rainy (I seem to be saying that a lot lately, wish winter would hurry up and end !). Donna was entertained by Louie, Kirsten, her Mom and Dad and Joseph and I. After two different times of sitting up in the chair for several hours each time, she had two good naps and was in fine form tonight. With a little help from her new friends (Dilaudid and Percocet) she was feeling no pain. Her back has begun to hurt again but they are keeping it under control with a little pain medication. (That's the infection causing the pain and of course the treatment is antibiotics and more antibiotics.)
Starting today, during the day she is off the oxygen and must only use it when she sleeps. There is still fluid in her lungs so she is having a bit of difficulty taking good deep breaths. If this doesn't clear up by Monday, they will drain the fluid. Today there is also a new theory being tested about the fluid that continues to drain from her heart, we are waiting for the results. The doctors still believe this fluid is most likely infected but so far it has not been confirmed. Of course, weekends in the hospital are a bit more relaxed than during the week. Not a lot happens, not a lot of information is forthcoming. That's okay, it's a good time for Donna to rest, eat, visit and regain her strength !
Friday, February 20, 2009
Still in ICU
Last night Donna was happy to see us and still HUNGRY. She is hooked up all over the place and they would only allow her to sit up at a 30 degree angle but no worries - I was able to spoon pudding and soup into her mouth. She was very talkative and we had a good time right there in the ICU - Joseph, Louie, Kirsten, Donna and myself had a few laughs, no tears.
Louie had thought they were going to move Donna to a "regular" room today but no, they have decided to keep her in ICU at least until Monday. That's okay as she gets much more attention there. Today finds her with even more elevated liver enzymes (not good). A "liver" specialist was called in and he is working on this now. The infectious disease doctor had thought that once the heart was stabilized (through surgery) the liver would go back to normal functions on it's own but that has not happened so far. They tried to take her off the oxygen but had to put it back on. She is quite congested in her lungs and is receiving breathing treatments for that too. The kidneys are a bit better and so far there have been no bad reports about the presence of bacteria in the fluid from her heart. Although, that culture must continue to grow for 4-5 more days to be conclusive. She had a PICC line in her arm (used to "hook up" to the IV's) and there is concern that perhaps it had developed a staff infection and possibly caused this last crisis. The original PICC line was removed and a new one inserted. No reports from that theory yet.
Just in - they took the internal blood pressure monitor out of her groin, so one less attachment, yea!!! That means she can sit up more now too.
Louie had thought they were going to move Donna to a "regular" room today but no, they have decided to keep her in ICU at least until Monday. That's okay as she gets much more attention there. Today finds her with even more elevated liver enzymes (not good). A "liver" specialist was called in and he is working on this now. The infectious disease doctor had thought that once the heart was stabilized (through surgery) the liver would go back to normal functions on it's own but that has not happened so far. They tried to take her off the oxygen but had to put it back on. She is quite congested in her lungs and is receiving breathing treatments for that too. The kidneys are a bit better and so far there have been no bad reports about the presence of bacteria in the fluid from her heart. Although, that culture must continue to grow for 4-5 more days to be conclusive. She had a PICC line in her arm (used to "hook up" to the IV's) and there is concern that perhaps it had developed a staff infection and possibly caused this last crisis. The original PICC line was removed and a new one inserted. No reports from that theory yet.
Just in - they took the internal blood pressure monitor out of her groin, so one less attachment, yea!!! That means she can sit up more now too.
Thursday, February 19, 2009
11:00 Visit
I just went to see Donna for the 11:00 a.m. visit. The respirator is out, and she is trying to talk lots. Donna's first question to me was is it lunch time? She said she has not eaten in a looong time! She made me look down the hallway to see if lunch was on its way. Louie said he would bring her a milkshake later after she ate a real lunch. Her board of information says that she is on a regular diet. She told me how much pain she was in last night and she was happy that she was feeling much better. She then told Louie and I that she was tired, and wanted to rest. There are still no results from any of the test. The heart doctor did say that her kidney's are looking better, but we are waiting on a kidney specialist.
Kylie
Kylie
Getting better
We left Donna sleeping last night and couldn't wait to see her this morning. Already Louie is in trouble - visiting hours for the CVICU do not start until 9:00 a.m. and he was there by 7:30 a.m. A Nurse Ratchett Twin (not quite that bad) set him straight and made him leave the unit but not until he was able to see that they took the respirator out! Yea! Donna can now communicate - she is alert and whispering and I'm sure she'll have plenty to say when visiting hours allow us in. The report this morning is that her kidneys are working better now (hooray!) and they are still concerned about the possibility of infection in the fluid that surrounded her heart. So far, no word on the test results and there is also the liver functions that were not as they should be. So, we expect more doctors and tests today.
Last night Louie told Donna that at this rate they might as well buy a house on the lake near ours and just live in Memphis - she gave a "thumbs up" sign. It seemed that even though she couldn't talk she was being funny. Her hand gestures allowed me to understand that she was asking a question - "had she had back surgery?" Apparently she thought that all her back pain had finally required surgery but we explained it was her heart and she seemed a little confused about what happened, understandably. By playing a game similar to Charades, I was able to understand most of what she was asking but in the end, she stumped me. Something she was asking, I couldn't figure out at all. That's when they gave her something to help her sleep and she drifted off. Hopefully later this morning we will finally know what she wanted or maybe it wasn't important.
Last night Louie told Donna that at this rate they might as well buy a house on the lake near ours and just live in Memphis - she gave a "thumbs up" sign. It seemed that even though she couldn't talk she was being funny. Her hand gestures allowed me to understand that she was asking a question - "had she had back surgery?" Apparently she thought that all her back pain had finally required surgery but we explained it was her heart and she seemed a little confused about what happened, understandably. By playing a game similar to Charades, I was able to understand most of what she was asking but in the end, she stumped me. Something she was asking, I couldn't figure out at all. That's when they gave her something to help her sleep and she drifted off. Hopefully later this morning we will finally know what she wanted or maybe it wasn't important.
Wednesday, February 18, 2009
Not a good report
Yesterday Donna was sick to her stomach, feeling pretty awful, couldn't eat, lots of back pain. During the night she was taken back to the Emergency Room for evaluation as her blood pressure remained very low. She has another kidney infection and her liver is not functioning correctly. After the CAT Scan and many tests, they found she had fluid surrounding her heart, a large amount of fluid. She was rushed in to emergency surgery and they drained the fluid successfully, she is now back in her room, in CVICU. (Cardio Vascular Intensive Care Unit). The concern is that the fluid is infected. We are waiting now to see her, she is back on the respirator, so not sure that she will be awake when we get to see her.
Please say more prayers and we will update you as we can.
Please say more prayers and we will update you as we can.
Monday, February 16, 2009
Valentine's Day
Louie was a real prince, a true cupid and lover of lover's - he gave Donna great big, huge, gigantic, enormous basket of chocolates and candy and hearts and all those things that girls love on the big V-Day and boy did she ever love it. She was delighted with each and every item and there was plenty of it, still is actually. I'm not sure what her favorite was but suffice it to say that she has now had a little taste of everything!
Finally we have a name for what "ails" Donna. It's called Osteomyelitis (infection in the bone). This is what is causing her to have back pain, probably what was causing it all along but who knew? The cure for this disease is antibiotics, via an IV and that's just what she's doing, imagine that! She is in great spirits and although the back pain gets the best of her sometimes, she is working with it and making progress. Each day is a new day, a different day. Some are really hard and some are easier but never are two the same. Her spirit shines through as she is happy most of the time. Every now and then she gets a litlle overwhelmed and cries (just like a girl) for a minute and then she gains control and is okay again. Like Saturday evening when she and I were waiting for Kirsten to arrive. She was so excited and yet when we knew she was entering the building I asked Donna - "Do you want to go down to the elevator with me to meet her?" and she said Oh yes, and we got her settled in a wheel chair but then she started crying. She said - when she sees me she is going to think I'm an OLD WOMAN! That made me laugh because as I reminded her - we are not exactly spring chickens anymore. I said - remember when we were younger and our parents were our age and we thought they were soooooooo old, well here we are. As I was leaning down near her face, talking softly and very closely, trying to comfort her, it occurred to me that I probably had bad breath - just like some old woman. I asked her if that was true and that really made her laugh - so with that, off we went to meet Kirsten. Well, then cried again but it was tears of joy tears this time ! ! !
Tonight she kept bending her arm, which would cause the IV pump to start beeping. Kirsten and I were sitting with her and would say - hey, straighten your arm. Before long she was joining in and every time she would (absent mindedly) bend her arm she would scold it as if it were a naughty child with a will of it's own and we'd all laugh. Before long she became tired of this silliness and told us she was ready to go "night-night" and both of us could just go home now. So we did.
Keep your fingers crossed and say prayers that Donna continues to progress and gets to go home to her mom and dad's soon. That will be the next step she needs to take as she continues this journey. All of you in California, get ready to greet her with open arms - she is coming home !
Not quite yet but she's definitely going in the right direction.
Finally we have a name for what "ails" Donna. It's called Osteomyelitis (infection in the bone). This is what is causing her to have back pain, probably what was causing it all along but who knew? The cure for this disease is antibiotics, via an IV and that's just what she's doing, imagine that! She is in great spirits and although the back pain gets the best of her sometimes, she is working with it and making progress. Each day is a new day, a different day. Some are really hard and some are easier but never are two the same. Her spirit shines through as she is happy most of the time. Every now and then she gets a litlle overwhelmed and cries (just like a girl) for a minute and then she gains control and is okay again. Like Saturday evening when she and I were waiting for Kirsten to arrive. She was so excited and yet when we knew she was entering the building I asked Donna - "Do you want to go down to the elevator with me to meet her?" and she said Oh yes, and we got her settled in a wheel chair but then she started crying. She said - when she sees me she is going to think I'm an OLD WOMAN! That made me laugh because as I reminded her - we are not exactly spring chickens anymore. I said - remember when we were younger and our parents were our age and we thought they were soooooooo old, well here we are. As I was leaning down near her face, talking softly and very closely, trying to comfort her, it occurred to me that I probably had bad breath - just like some old woman. I asked her if that was true and that really made her laugh - so with that, off we went to meet Kirsten. Well, then cried again but it was tears of joy tears this time ! ! !
Tonight she kept bending her arm, which would cause the IV pump to start beeping. Kirsten and I were sitting with her and would say - hey, straighten your arm. Before long she was joining in and every time she would (absent mindedly) bend her arm she would scold it as if it were a naughty child with a will of it's own and we'd all laugh. Before long she became tired of this silliness and told us she was ready to go "night-night" and both of us could just go home now. So we did.
Keep your fingers crossed and say prayers that Donna continues to progress and gets to go home to her mom and dad's soon. That will be the next step she needs to take as she continues this journey. All of you in California, get ready to greet her with open arms - she is coming home !
Not quite yet but she's definitely going in the right direction.
Friday, February 13, 2009
Friday - 1 week completed at rehab, 2 more to go
When we visited Donna yesterday she was in a great mood again. She was talking a lot and had plenty to say. Mostly she talked about the "waitress" and the "OT" Eventually we decided that the waitress she kept talking about must be the different nurses on the floor and the OT might be the doctors or possibly the Physical Therapist. These words were easy to understand but we are certain there are no waitresses around ! She is very pleased with the therapists she is working with. She says the PT is great and helping a lot and the ST gives her HARD tasks!
Although she said she was not feeling any pain, I found out that she is being given pain medication. (That may account for how much she is talking !) Seems there is still quite a bit of back and leg pain. Sometime today they will do another MRI (YEA, we were hoping this would be done soon.) so they can compare it with the last one they did. Remember she came to Memphis having just been diagnosed with 3 bulging discs. The (contrast) MRI that was done here showed there was infection in her spine, some evidence of arthritis and only slightly bulging discs. The doctors here said that no way the doctors in Visalia could have known what was going on, so they didn't do anything wrong. No one knew that bacteria was growing so rampantly in her body. I'm sure they will compare the last MRI with this one and decide what to do next. As it is Friday, and no one could say for certain what time the MRI will be done, it could be Monday before we have the results.
Although she said she was not feeling any pain, I found out that she is being given pain medication. (That may account for how much she is talking !) Seems there is still quite a bit of back and leg pain. Sometime today they will do another MRI (YEA, we were hoping this would be done soon.) so they can compare it with the last one they did. Remember she came to Memphis having just been diagnosed with 3 bulging discs. The (contrast) MRI that was done here showed there was infection in her spine, some evidence of arthritis and only slightly bulging discs. The doctors here said that no way the doctors in Visalia could have known what was going on, so they didn't do anything wrong. No one knew that bacteria was growing so rampantly in her body. I'm sure they will compare the last MRI with this one and decide what to do next. As it is Friday, and no one could say for certain what time the MRI will be done, it could be Monday before we have the results.
Thursday, February 12, 2009
WOW and Continuous Help and Prayers
If you look at the most recent picture posted and scroll down to the first one, you should be awestruck. In the first picture, we were amazed that Donna could physically and emotionally, smile. Now, she stood up and walked to pose for a picture on her own. Yesterday, she looked at a menu, drew an arrow, and WROTE "DONNA" beside it. Just like you would in the office if someone decided that you should all order out. When Louie asked if she wanted more, she replied, "No, its a big chicken salad." That means-she read the menu too! This is an amazing accomplishment but Donna needs continuous prayer for her communication skills, verbal processing, understanding and fine motor skills to improve. Her words are often "verbal salad" and simple directions are not comprehended. I know a lot of people have sent generous gift cards which have been such a blessing and if you talk to Louie, I am sure he can tell you other things they might need. But I want to speak up for my family (Who may erase this blog as soon as i finish). They have all been working around the clock, turning their lives isnide out (without one word of complaint) to help take care of Donna, understand her recovery, and be good hosts. One thing that Donna has taking a liking too, is restaurant food. Our "runner's club" California-healthy eater is loving things rich in taste, unlike hospital food. If anyone has been debating how to help, please consider restaurant Gift certificates. From $5-100, every bit helps. Especially from places that will deliver to Baptist Rehab or Donna's Parents House (both addresses are listed on previous sites). I don't know all the rehab rules but I do know this would give my incredible family a small break from cooking and running around nonstop, helping "lost" Louie from driving in circles looking for restaurants in an unknown city and give Donna a special treat. There are plenty of resturant ideas (or grocery store-Kroger) are near the Rehab facility. Just google this in Gernmantown or Cordova, TN and plenty pops up or feel free to e-mail me at KacieDougherty612@hotmail.com. Anything from a chain resturant will be sent home with Donna, this as well as your famous casserole dishes will be a hot commodity when they get home to Cali. Thank you again for your prayers and well wishes for Donna as well as for everyone that is caring for her.
Love,
Kacie McDonnell
Donna's Neice
On the Border Mexican Grill - more info »
7935 Winchester Rd, Memphis, TN - (901) 755-6404
Olive Garden Italian Restaurant - more info »
7778 Winchester Rd, Memphis, TN - (901) 624-2003
Formosa Restaurant - more info »
6685 Quince Rd # 126, Memphis, TN - (901) 753-9898
Equestria Restaurant & Lounge - more info »
3165 Forest Hill Irene Rd, Germantown, TN - (901) 869-2663
Yia Yia's Euro Cafe - more info »
7615 W Farmington Blvd # 1, Germantown, TN - (901) 756-4004
Brooklyn Bridge Italian Restaurant - more info »
1779 Kirby Pkwy # 5, Germantown, TN - (901) 755-7413
New Asia Restaurant - more info »
2075 Exeter Rd # 90, Germantown, TN - (901) 758-8388
Las Tortugas Deli Mexicana - more info »
1215 S Germantown Rd, Germantown, TN - (901) 751-1200
Corky's Bar-BQ - more info »
5259 Poplar Ave, Memphis, TN - (901) 685-9744
Pizza Hut - more info »
6532 Quince Rd, Memphis, TN - (901) 362-3333
Love,
Kacie McDonnell
Donna's Neice
On the Border Mexican Grill - more info »
7935 Winchester Rd, Memphis, TN - (901) 755-6404
Olive Garden Italian Restaurant - more info »
7778 Winchester Rd, Memphis, TN - (901) 624-2003
Formosa Restaurant - more info »
6685 Quince Rd # 126, Memphis, TN - (901) 753-9898
Equestria Restaurant & Lounge - more info »
3165 Forest Hill Irene Rd, Germantown, TN - (901) 869-2663
Yia Yia's Euro Cafe - more info »
7615 W Farmington Blvd # 1, Germantown, TN - (901) 756-4004
Brooklyn Bridge Italian Restaurant - more info »
1779 Kirby Pkwy # 5, Germantown, TN - (901) 755-7413
New Asia Restaurant - more info »
2075 Exeter Rd # 90, Germantown, TN - (901) 758-8388
Las Tortugas Deli Mexicana - more info »
1215 S Germantown Rd, Germantown, TN - (901) 751-1200
Corky's Bar-BQ - more info »
5259 Poplar Ave, Memphis, TN - (901) 685-9744
Pizza Hut - more info »
6532 Quince Rd, Memphis, TN - (901) 362-3333
Donna's Birthday Party
We (mom, dad, Darlene and Joseph) arrived to find Donna and Louie already waiting for us in the dining room. So, we had to work fast - pass out the food, set up the gift table and let the ice cream cake thaw. We had the room to ourselves and Donna was delighted by it all. She had been opening presents all day long and now there were more. She sure was in fine form, loving being the center of attention. Louie had been with her all day and said she could definitely give Bill Cosby a run for his money, she was ON all day. Making jokes, cutting up, laughing a lot and making us laugh way too much! She ate a good dinner, polished off a big slice of cake and proceeded to ooooooh and aaaaaah over each gift. I think her favorite must have been the tennis shoes because when Louie invited her to "take a walk" she was ready to go. (Lately she has preferred sitting in the wheelchair so it was good to see her get up and take a little stroll !) Happy Birthday Donna !
She says - Thank you all for making my birthday so special. Thanks for all the cards, flowers, gifts and e-mails. Every one was so wonderful and made me feel so loved ! ! !
She says - Thank you all for making my birthday so special. Thanks for all the cards, flowers, gifts and e-mails. Every one was so wonderful and made me feel so loved ! ! !
Wednesday, February 11, 2009
Today is Donna's birthday !
Last night when we arrived with her homemade daily dinner (well, I'm trying to get her fatter because sh's awfully skinny now and hates the hospital food) we found Donna very upset. Apparently Nurse Ratchett ( the crazy one from One Flew Over the Cuckoo's Nest) was all over Donna. While Donna knew I was bringing her some "real" food, she attempted to eat a little of the hospital prepared meal in the dining room. This crazy old nurse made a point to examine how much dinner Donna had eaten, scolded her, made an example of her to the others and basically embarrassed and humiliated Donna as if she were a naughty child. Donna was outraged and very upset. Once I heard about all this I found nurse FRAN and gave her a piece of my mind. A very big piece! Then I called and reported her to Donna's case manager who promises to make an official complaint with the hospital. Hopefully we will never see this horrible woman again. Everyone else has been wonderful, I guess there is always going to be at least one jerk who acts up. I've made quite a big deal of this woman's inappropriate behavior and strongly suggested she get some additional training on how to work with Stroke patients! The case manager was very apologetic and promised to take care of things. Hey, don't mess with my sister when she is down! ! ! ! ! (My red-headed temper let loose on this one and that's not a good thing. Louie calls it 'Doing a Darlene ! Some of you know what that means.)
On to better topics - today is Donna's birthday!!!!!!!!!!!!!!!!!
Well, could be more stinky than to have to spend your birthday in a hospital? Not much! No worries though, we plan to make this a memorable birthday - one she'll never forget. First there are lots and lots of presents. (She really has no where to put things, except a very small closet and even smaller bedside table). Then tonight we plan to bring in some special food from a nearby restaurant and an ice cream cake ! Probably some balloons and colorful plates, etc. We would love to take her out to dinner but don't think it's quite time. She'll have candles to blow out and we'll sing - unfortunately for her, she'll have to listen to our rendition of Happy Birthday ! I'll try to take some pictures of the birthday girl and post them tomorrow.
Side note - Donna and I are 14 months apart so there are a few months there (my birthday is November 24 and hers is February 11) when we are actually 2 years apart. That makes me feel OLD so I always like it when her birthday finally arrives and I am only ONE year older rather than TWO !
On to better topics - today is Donna's birthday!!!!!!!!!!!!!!!!!
Well, could be more stinky than to have to spend your birthday in a hospital? Not much! No worries though, we plan to make this a memorable birthday - one she'll never forget. First there are lots and lots of presents. (She really has no where to put things, except a very small closet and even smaller bedside table). Then tonight we plan to bring in some special food from a nearby restaurant and an ice cream cake ! Probably some balloons and colorful plates, etc. We would love to take her out to dinner but don't think it's quite time. She'll have candles to blow out and we'll sing - unfortunately for her, she'll have to listen to our rendition of Happy Birthday ! I'll try to take some pictures of the birthday girl and post them tomorrow.
Side note - Donna and I are 14 months apart so there are a few months there (my birthday is November 24 and hers is February 11) when we are actually 2 years apart. That makes me feel OLD so I always like it when her birthday finally arrives and I am only ONE year older rather than TWO !
Tuesday, February 10, 2009
A rainy day in Memphis
It's not cold today but looks like it should be, it's rainy and dreary out.
Louie was able to meet with the doctor this morning and here is the update -
Donna's physical therapy will be adjusted to accomodate her back pain. He (Louie) is not sure if the PT was aware of her back issues, or not. He didn't find out what happened yesterday that made her blood pressure plummet so far down. No further news from the dye tests done yesterday, the nurse had reported the preliminary results showed all clear for blood clots. There is still infection in her lungs, that is being treated with the antibiotics, nothing changed there. Donna did not rest well last night so she took a nap this morning. She is being given Tylenol for pain.
This morning she has already had her session with the the Occupational Therapist now. They are encouraging her to use her right hand more, which tends to be weaker than the left, and she is right handed. So they are focusing on small motor skills. For example - picking pennies/beans out of a lump of clay. She often finds it hard to follow directions so they must show her what to do. For example she can stick out her tongue, move it left to right, up and down, etc. But if you ask her to "point" to her nose, she doesn't understand what you want her to do.
If you were to have a conversation with Donna now you would notice some different things. Originally, once she found her voice she had trouble finding words. She would get stuck mid-sentence and struggle to finish the thought. Now, she talks plenty but some of the words come out in what sounds like "gibberish", they are similar to a scrambled word. and are injected in the sentence just as naturally as if they were pronounced properly. All the vowels and consonants may be there, but in a different order. Sometimes it's really hard to understand what she is saying. Her attitude is great though, she seems to understand that we don't understand so she tries again, from a different angle. It can take a long while to get through these conversations but we do. The other day she was talking about INSULIN (which they had been giving her for blood sugar control) but all we could understand was "N". Eventually we got it! Another time she was talking about a "Neurologist" and that was really tough, but again, we got it. It's sort of like playing Charades. Her intelligence shines through, the communication part is still challenging, for all of us. One minute she is brushing her hair with her toothbrush (she had just brushed her teeth with it getting ready for bed. The toothbrush was sitting next to her hairbrush and I guess she was just thinking "brush". ) and the next she is talking about what she had for dinner and how absolutely YUCKY the food was, as clear and concise as anyone would. To say that things are constantly changing for her, is an understatement ! Each day brings something new as she travels down the road to recovery.
Louie was able to meet with the doctor this morning and here is the update -
Donna's physical therapy will be adjusted to accomodate her back pain. He (Louie) is not sure if the PT was aware of her back issues, or not. He didn't find out what happened yesterday that made her blood pressure plummet so far down. No further news from the dye tests done yesterday, the nurse had reported the preliminary results showed all clear for blood clots. There is still infection in her lungs, that is being treated with the antibiotics, nothing changed there. Donna did not rest well last night so she took a nap this morning. She is being given Tylenol for pain.
This morning she has already had her session with the the Occupational Therapist now. They are encouraging her to use her right hand more, which tends to be weaker than the left, and she is right handed. So they are focusing on small motor skills. For example - picking pennies/beans out of a lump of clay. She often finds it hard to follow directions so they must show her what to do. For example she can stick out her tongue, move it left to right, up and down, etc. But if you ask her to "point" to her nose, she doesn't understand what you want her to do.
If you were to have a conversation with Donna now you would notice some different things. Originally, once she found her voice she had trouble finding words. She would get stuck mid-sentence and struggle to finish the thought. Now, she talks plenty but some of the words come out in what sounds like "gibberish", they are similar to a scrambled word. and are injected in the sentence just as naturally as if they were pronounced properly. All the vowels and consonants may be there, but in a different order. Sometimes it's really hard to understand what she is saying. Her attitude is great though, she seems to understand that we don't understand so she tries again, from a different angle. It can take a long while to get through these conversations but we do. The other day she was talking about INSULIN (which they had been giving her for blood sugar control) but all we could understand was "N". Eventually we got it! Another time she was talking about a "Neurologist" and that was really tough, but again, we got it. It's sort of like playing Charades. Her intelligence shines through, the communication part is still challenging, for all of us. One minute she is brushing her hair with her toothbrush (she had just brushed her teeth with it getting ready for bed. The toothbrush was sitting next to her hairbrush and I guess she was just thinking "brush". ) and the next she is talking about what she had for dinner and how absolutely YUCKY the food was, as clear and concise as anyone would. To say that things are constantly changing for her, is an understatement ! Each day brings something new as she travels down the road to recovery.
Monday, February 9, 2009
This day is almost over-
No news to share. Donna completed the dye test but no results have been forthcoming. She remains in bed, in her room, resting comfortably. The speech therapist decided it would be best to sit by her bedside for their session this afternoon so they have been working together for a while now. Donna's bed is now flat, so she is not sitting up but also no longer positioned with her feet above her head. She says she does not want to sit up, fearing another episode like earlier today. All vital signs are good.
Today started off well but..................
Yesterday (Sunday) Erik had breakfast with his mom and then was off to the airport. Louie took the next shift and was able to go to occupational, physical and speech therapy sessions with Donna. He says it was VERY informative and eye opening!
Remembering that Donna arrived in Memphis on January 15, having just been diagnosed with 3 bulging discs in her back. She "limped and wimped" around the house for several days and on the actual day of the wedding, Jan. 18. she decided to stay home because she felt so bad. She had lost weight and we thought she was dehydrated from not eating/drinking enough then she crashed! Since all this happened she has not complained about her back hurting. The MRI (at Baptist Hospital) showed that while she did have evidence of slightly bulging discs, she also had signs of a little arthritis, normal for her age, and definite signs of "the" infection in her back. The doctor suggested that the infection may have been what was causing the back pain. So, meanwhile she has been grunting and groaning when moving about but not able to identify exactly what was hurting. We thought maybe all the time she spent in bed had helped to ease the bulging disc pain and the pain she was feeling would ease as she began to move around more.
She has been in great spirits, talking a lot, smiling, joking and making it clear she is ready to work hard and get well.
This morning she began the physical therapy session and apparently had just begun when she started complaining that her left leg and back began to REALLY hurt, then her blood pressure dropped alarmingly low, she almost passed out. They immediately took her back to her room, elevated her feet (a lot) and had her head down. She had turned quite pale, loosing all color. I just saw her and she had some color in her cheeks, although her lips looked bluish and her forehead pale and white. (I had promised to bring lunch and we were going to fix her hair, put on some makeup, etc.) Unfortunately, the concern now is about blood clots - they have just taken her down to inject dye and take a look at what might be going on. When I saw her, she was talking and in good spirits, a bit confused about what the heck all this was about but was taking it well. Louie is with her now and I will write an update as soon as we hear more.
Remembering that Donna arrived in Memphis on January 15, having just been diagnosed with 3 bulging discs in her back. She "limped and wimped" around the house for several days and on the actual day of the wedding, Jan. 18. she decided to stay home because she felt so bad. She had lost weight and we thought she was dehydrated from not eating/drinking enough then she crashed! Since all this happened she has not complained about her back hurting. The MRI (at Baptist Hospital) showed that while she did have evidence of slightly bulging discs, she also had signs of a little arthritis, normal for her age, and definite signs of "the" infection in her back. The doctor suggested that the infection may have been what was causing the back pain. So, meanwhile she has been grunting and groaning when moving about but not able to identify exactly what was hurting. We thought maybe all the time she spent in bed had helped to ease the bulging disc pain and the pain she was feeling would ease as she began to move around more.
She has been in great spirits, talking a lot, smiling, joking and making it clear she is ready to work hard and get well.
This morning she began the physical therapy session and apparently had just begun when she started complaining that her left leg and back began to REALLY hurt, then her blood pressure dropped alarmingly low, she almost passed out. They immediately took her back to her room, elevated her feet (a lot) and had her head down. She had turned quite pale, loosing all color. I just saw her and she had some color in her cheeks, although her lips looked bluish and her forehead pale and white. (I had promised to bring lunch and we were going to fix her hair, put on some makeup, etc.) Unfortunately, the concern now is about blood clots - they have just taken her down to inject dye and take a look at what might be going on. When I saw her, she was talking and in good spirits, a bit confused about what the heck all this was about but was taking it well. Louie is with her now and I will write an update as soon as we hear more.
Sunday, February 8, 2009
Donna starts "the" program
Donna is settled in at the new place and has already undergone a full day of evaluations. Now, the work begins. She has seen the physical, speech and occupation therapists. They all work together to keep her on track and provide the very best personalized program for her. They have all sorts of equipment, a pool and private rooms where they can spend quiet time together.
Erik- got to spend some good time with Donna and she seemed to really enjoy his company. She responded enthusiatically when she saw him and he stayed by her side until he had to return home. He brought his computer and showed her lots pictures which she thoroughly enjoyed.
Louie is here too and working to find his way to the new facility. It's not far away from our house, just in the opposite direction. He thinks he can "run" over and I'm sure he could. At this rate, he'll know how to get all around Memphis in no time.
Donna's program requires all her time and attention until 4:00 p.m. Her schedule is posted on the bulletin board in her room and you can see she has a full schedule! She is right across from the nurses station and this place is quite a bit smaller and much quieter. Visiting hours are over at 8:30 p.m. She is getting a very intensive workout so while we'd love to be with her more, we can see that we are a distraction to her. We all agree that it's best to let her focus on getting well, then after 4:00 we totally take over. She is sharing her room with a roommate. The first woman had hip replacement and the new roommate has had knee surgery. Everyone has their own special program to follow and stay quite busy so they aren't really in the room together much.
To all her co-workers who sent the gift cards. Remember that Donna came to visit and attend a wedding, not spend two months here. She has graduated from wearing pajamas all day to being able to wear REAL clothes but she didn't have many. So, she needed workout clothes to feel good, look good and do good. Guess what - she has plenty now! Erik helped pick out some really cute things and she is very excited and happy to have them. Also, she needed tennis shoes and had not brought any so Louie ordered some and they will be here Monday. We think she is going to be the bright star in the PT room now ! !
Attached is a photo I took last night. Sorry, it didn't turn out well, I'll try again later today.
Friday, February 6, 2009
Donna's New Digs
It's confirmed - Donna is definitely moving today. In about 1/2 hour she will make the trip to her next destination - Baptist Rehabilitation Center. It's probably 5 miles down the road so not too far.
Louie is here and Donna's Dad is also helping with the move. Surprisingly, the hospital is telling them they have to move Donna. (We had thought they would transport her but guess not.)
So, many of you have asked for a NEW picture of Donna and I'll be sure to take one this afternoon.
Here is the web page address if you want to read more about this facility:
http://www.bmhcc.org/facilities/germantown/
Also, we will ask the hospital to hold any cards/gifts etc. Then we will be sure to get them to her at the new place.
Louie is here and Donna's Dad is also helping with the move. Surprisingly, the hospital is telling them they have to move Donna. (We had thought they would transport her but guess not.)
So, many of you have asked for a NEW picture of Donna and I'll be sure to take one this afternoon.
Here is the web page address if you want to read more about this facility:
http://www.bmhcc.org/facilities/germantown/
Also, we will ask the hospital to hold any cards/gifts etc. Then we will be sure to get them to her at the new place.
Thursday, February 5, 2009
Donna is moving on up (or is it out?)
The Case Manager just called - they have "almost" positively secured a room and approval from the insurance company to move Donna to the Baptist Rehab Center tomorrow. There is a verbal agreement and they are waiting on the paperwork to arrive. It's possible she wouldn't move until Monday but the plan is to go tomorrow!!!!!!!!!!!!!!!
So, don't send any more cards, flowers, etc until this is confirmed but the address is:
Baptist Rehabilitation
2100 Exeter Road
Germantown, TN 38138
(Germantown is part of Memphis. )
She is scheduled to be at Baptist Rehab for 3 weeks, then 2 weeks at her parents house where she will have a nurse, speech, occupational and physical therapists coming to the house to work with her. 5 more weeks, the countdown is on ! ! !
Donna's parent's address:
Barbara and Delmer Baker
274 Bendigo Drive
Cordova, TN 38018
(Cordova is part of Memphis too.)
So, don't send any more cards, flowers, etc until this is confirmed but the address is:
Baptist Rehabilitation
2100 Exeter Road
Germantown, TN 38138
(Germantown is part of Memphis. )
She is scheduled to be at Baptist Rehab for 3 weeks, then 2 weeks at her parents house where she will have a nurse, speech, occupational and physical therapists coming to the house to work with her. 5 more weeks, the countdown is on ! ! !
Donna's parent's address:
Barbara and Delmer Baker
274 Bendigo Drive
Cordova, TN 38018
(Cordova is part of Memphis too.)
Wednesday, February 4, 2009
Visiting Donna
Dear family and friends,
Many people are calling and writing to ask "WHEN can we see Donna?" I'd like to ask all of you for your patience and just a little more time. Right now we don't know the next step for her - how long will she remain in her hospital room, when will they move her, and where will they move her? There is another floor in Baptist Hospital (the 4th floor) where she could go for a period of time that provides skilled nursing. Here she could continue to work with the speech/physical therapists. Yet, this morning the hospital suggested it might be best to transfer to an off campus facility called Baptist Rehabilitation which is a more intensive recovery program. That sounds good, right? But, there is still a possibility that she will go home for continued treatment. We just don't know the answers yet.
Also, there is insurance coverage to consider - are they willing to let her stay in Memphis, for how long, what will they approve - the rehab place or something else? You all know that insurance rules our world so, for now - we are in a holding pattern to see what is next. I suspect it will take a day or two to iron out all the details.
Last of all that, there is just the pure fact that all of this will progress only as quickly as Donna is ready to move on. Plese understand that we will get the latest and greatest news out to you as fast as possible. Then you can make your plans ot visit Donna in Memphis or Visalia.
Thanks !
Many people are calling and writing to ask "WHEN can we see Donna?" I'd like to ask all of you for your patience and just a little more time. Right now we don't know the next step for her - how long will she remain in her hospital room, when will they move her, and where will they move her? There is another floor in Baptist Hospital (the 4th floor) where she could go for a period of time that provides skilled nursing. Here she could continue to work with the speech/physical therapists. Yet, this morning the hospital suggested it might be best to transfer to an off campus facility called Baptist Rehabilitation which is a more intensive recovery program. That sounds good, right? But, there is still a possibility that she will go home for continued treatment. We just don't know the answers yet.
Also, there is insurance coverage to consider - are they willing to let her stay in Memphis, for how long, what will they approve - the rehab place or something else? You all know that insurance rules our world so, for now - we are in a holding pattern to see what is next. I suspect it will take a day or two to iron out all the details.
Last of all that, there is just the pure fact that all of this will progress only as quickly as Donna is ready to move on. Plese understand that we will get the latest and greatest news out to you as fast as possible. Then you can make your plans ot visit Donna in Memphis or Visalia.
Thanks !
My Stroke of Insight - there is a web page
http://mystrokeofinsight.com/
Previously I recommended the book - My Stroke of Insight and now I've just learned that there is a web-site too. (Donna's friend Roger brought this to our attention)
Knowing that we are all seeking to understand more about what happened and continues to happen to Donna, you might want to take a look at this one. I just took a quick glance and it looks very intriguing.
Previously I recommended the book - My Stroke of Insight and now I've just learned that there is a web-site too. (Donna's friend Roger brought this to our attention)
Knowing that we are all seeking to understand more about what happened and continues to happen to Donna, you might want to take a look at this one. I just took a quick glance and it looks very intriguing.
Tuesday, February 3, 2009
Wonder of wonder, miracle of miracles
Donna's admitting doctor came and talked with us tonight. He has confirmed that her successful journey through all this is an absolute MIRACLE. Had she not been IN the emergency room when she crashed that first night, the emergency room where there were literally eight doctors who came running, she would have died. She would have died if she had been in the emergency waiting room, in a patient room on another floor of the hospital, anywhere in the world other than in the emergency room triage. He said that she absolutely had god's hand on her to get her through this. He said remember this - doctors treat, god cures. When they recommended heart surgery, he told us that no one (not one of the doctors) expected her to live through it - but we all know how that turned out. This is the first time we actually had a chance to sit down and talk with this doctor and he was delightful. He told us that sure, he had seen similar cases, but none of them had this outcome, none of the patients survived. He told Donna - you must be very special and you must have some unfinished business to complete because you've been given a second chance.
So, here's more of the story - the doctors here are recommending that Donna stay here to continue her treatment. They believe she needs to continue receiving antibiotics via an IV for five more weeks. Sure, they could transfer her to a doctor in Visalia but they don't recommend that. They feel like there are so many complications - the heart, the infection, the stroke and so on that it wouldn't be a matter of just finding one doctor, but rather a whole TEAM of doctors. The recommendation is that she not start over and take any chances of interrupting this miraculous recovery that we are all witnessing. So, it's not confirmed, but it may be a little longer until she returns home to Visalia.
By the way, the doctors have determined that the bacterial infection that started all of this originated in her mouth. Apparently this type of bacteria looks for the weakest spot in the body, to set up a home base, and in Donna's case, as in many folks, it was her heart. They don't know how long the bacteria had been growing but as we may have mentioned before - what the doctors normally see as a "grain of salt" size infection was in fact a golf ball size "vegetation" growing on her heart valve. The bacteria could have been released into her blood stream from having her teeth cleaned, or who knows, we'll never know for sure. Still, once it entered her body and took up residence on her heart it was just a matter of time until her whole body was overcome by the infection.
And the rest of today's story - last night I asked Donna to touch her finger to her ear and she had no idea what I was talking about. I asked her to tell me her name and she couldn't. Tonight the doctor asked her to pick up her water glass with her right hand and put it in her left hand, and she did ! He then asked her what her name was and she said D, Do, Donna ! He asked her what he was holding in his hand and she said - Why, uhmmm it's a lovely, uhmmm a very nice, a uhmmm shiny, uhmmm good looking - pen ! And she was right! Then, she asked him if she could have it and we all burst out laughing. Her sense of humor has been heightened - she often finds humor in much of what is going on, she laughs at herself, makes faces, makes comments that have us rolling on the floor. Her comprehension is growing too - I saw it change exponentially from this morning to this evening. She is still struggling to "find" words to tell us what she's thinking but she hasn't quit trying and I doubt she ever will.
So, here's more of the story - the doctors here are recommending that Donna stay here to continue her treatment. They believe she needs to continue receiving antibiotics via an IV for five more weeks. Sure, they could transfer her to a doctor in Visalia but they don't recommend that. They feel like there are so many complications - the heart, the infection, the stroke and so on that it wouldn't be a matter of just finding one doctor, but rather a whole TEAM of doctors. The recommendation is that she not start over and take any chances of interrupting this miraculous recovery that we are all witnessing. So, it's not confirmed, but it may be a little longer until she returns home to Visalia.
By the way, the doctors have determined that the bacterial infection that started all of this originated in her mouth. Apparently this type of bacteria looks for the weakest spot in the body, to set up a home base, and in Donna's case, as in many folks, it was her heart. They don't know how long the bacteria had been growing but as we may have mentioned before - what the doctors normally see as a "grain of salt" size infection was in fact a golf ball size "vegetation" growing on her heart valve. The bacteria could have been released into her blood stream from having her teeth cleaned, or who knows, we'll never know for sure. Still, once it entered her body and took up residence on her heart it was just a matter of time until her whole body was overcome by the infection.
And the rest of today's story - last night I asked Donna to touch her finger to her ear and she had no idea what I was talking about. I asked her to tell me her name and she couldn't. Tonight the doctor asked her to pick up her water glass with her right hand and put it in her left hand, and she did ! He then asked her what her name was and she said D, Do, Donna ! He asked her what he was holding in his hand and she said - Why, uhmmm it's a lovely, uhmmm a very nice, a uhmmm shiny, uhmmm good looking - pen ! And she was right! Then, she asked him if she could have it and we all burst out laughing. Her sense of humor has been heightened - she often finds humor in much of what is going on, she laughs at herself, makes faces, makes comments that have us rolling on the floor. Her comprehension is growing too - I saw it change exponentially from this morning to this evening. She is still struggling to "find" words to tell us what she's thinking but she hasn't quit trying and I doubt she ever will.
Well deserved afternoon nap
It's cold outside and Donna is napping this afternoon. (At night, those crazy hospital people will not leave you alone. They are in and out poking, prodding, taking and giving - it's exhausting just being there !)
Yesterday they took the central IV line out of her right shoulder and put a line in the top of her hand. Quite accidentally, she pulled it out and it had to be reinserted. Ouch!
Good news - Donna walked 400' today, with a walker. They think that is fabulous! ! ! She obviously understood what they said yesterday about needing to build her strength before she can go home. I think she's had enough of Baptist Hospital !
The infectious disease doctor said - 5 more weeks of antibiotics. Does that mean in the hospital, or can she go home? Not confirmed yet so we'll report as soon as we get the details.
Ground Hog Day-Evening
Last night found Donna to be in great spirits. She had been very busy all day yet she wasn’t tired, in fact, we stayed up until 10:00 p.m. before finally calling it night. The neurologist stopped by and said she was making moderate progress in her physical skills but she is not doing as well in progression on her language skills. This is difficult news for us today as she has become quite the master of deception. When asked a question she will agree, say a few well chosen words and most people go away thinking they just had a good conversation with her but – she doesn’t catch all of what they were saying. They don’t always know it though. So, when asked questions like – Good Morning Mrs. Martin, how are you today? Are you having any pain? Did you sleep well? She will answer, oh yes, sure, okay and so on. But when she is wanting to talk to you about something it sounds something like this – Well, well so…. well, so maybe, well so maybe, well so maybe could – It is hard for us because we want to get what she is looking for so badly. We wait patiently to give her an opportunity to find the word but it’s difficult not to start offering out ideas/words that she may be searching for. We are all learning how to do this part of recovery together. She’ll often interrupt her “wells” by rolling her eyes and saying “Oh, shut up”, or “blah, blah, blah, blah, blah” and laugh at herself. She’s got a great attitude and has quit crying when getting frustrated with finding the right word. We ask for your prayers that her language communication skills will keep improving and that her speech and understanding sharpen. Each day brings her closer to being able to express her thoughts and really, it’s only been two weeks since this all began so she is making amazing progress!
The last “well, so maybe” conversation ended up being a request to know how long it was going to be until Joseph (Darlene’s husband) arrived with her ice cream. He had called and promised to bring it and she was growing impatient. I think she was trying to tell me – “Well, so maybe we could call him and find out what the heck is taking so long!” (She did get her ice cream and thoroughly enjoyed it!) (I seem to remember thinking the same thing when Joseph used to bring treats home when I was a kid. I think he must eat one scoop there and get another for the road-Kacie)
She loves the cards, letters and photos from everyone. Today the Speech Therapist said she was going to have Donna start “reading” the cards. One card from Donna’s school arrived with a picture in it and she recognized the person and could say her name (recognizing people that haven’t been around in the last 2 weeks but are a part of her life is good). While it seemed that she read who had sent it, she wasn’t actually reading any of it, she was just going from memory of who sent it, since we had already opened the card and seen the picture inside earlier that morning. The therapist is on to her though and knows she is “faking it”. Her language skills are growing each day, but for now she is not able to read and write so they will begin working on that next. They took her down for another CAT scan this morning and we are waiting to hear from the Case Manager. Last night the neurologist said when she could walk (even if it’s with a walker) steadily on her own, get in and out of a car, or sit on chair, go from sitting to standing easily on her own – then it was time to go home. However, that does not consider that her infectious disease doctor may have other plans. So, that’s why we are waiting to see what the Case Manager has planned. Louie returns on Thursday evening and meanwhile, we are holding the fort down. Soon, we should have an updated progress report from the doctors and some possible plans for the future.
Meanwhile, if you want to send cards here is the address:
Baptist Memorial Hospital
Attn: Donna Martin
6019 Walnut Grove Road
Rm2424
Memphis, TN 38120
The last “well, so maybe” conversation ended up being a request to know how long it was going to be until Joseph (Darlene’s husband) arrived with her ice cream. He had called and promised to bring it and she was growing impatient. I think she was trying to tell me – “Well, so maybe we could call him and find out what the heck is taking so long!” (She did get her ice cream and thoroughly enjoyed it!) (I seem to remember thinking the same thing when Joseph used to bring treats home when I was a kid. I think he must eat one scoop there and get another for the road-Kacie)
She loves the cards, letters and photos from everyone. Today the Speech Therapist said she was going to have Donna start “reading” the cards. One card from Donna’s school arrived with a picture in it and she recognized the person and could say her name (recognizing people that haven’t been around in the last 2 weeks but are a part of her life is good). While it seemed that she read who had sent it, she wasn’t actually reading any of it, she was just going from memory of who sent it, since we had already opened the card and seen the picture inside earlier that morning. The therapist is on to her though and knows she is “faking it”. Her language skills are growing each day, but for now she is not able to read and write so they will begin working on that next. They took her down for another CAT scan this morning and we are waiting to hear from the Case Manager. Last night the neurologist said when she could walk (even if it’s with a walker) steadily on her own, get in and out of a car, or sit on chair, go from sitting to standing easily on her own – then it was time to go home. However, that does not consider that her infectious disease doctor may have other plans. So, that’s why we are waiting to see what the Case Manager has planned. Louie returns on Thursday evening and meanwhile, we are holding the fort down. Soon, we should have an updated progress report from the doctors and some possible plans for the future.
Meanwhile, if you want to send cards here is the address:
Baptist Memorial Hospital
Attn: Donna Martin
6019 Walnut Grove Road
Rm2424
Memphis, TN 38120
Oh Shut Up!
Oh Shut Up! This is what I heard as I tried to help Donna back into bed! She was smiling, and said it with a good nature! I encouraged her to use her legs and her muscles to help her move into bed. She had to be moved lots this morning, and I think was tired of it!
Then the SLP wanted to work with her!
Before all that I brought my daughter Hannah up to see her and spend some time with Donna this morning. She really liked seeing Hannah. They watched cartoons, and read lots of cards. Hannah sat on her lap, and Donna showed her all the stickers and pictures!
Then the SLP wanted to work with her!
Before all that I brought my daughter Hannah up to see her and spend some time with Donna this morning. She really liked seeing Hannah. They watched cartoons, and read lots of cards. Hannah sat on her lap, and Donna showed her all the stickers and pictures!
Monday, February 2, 2009
More Monday Updates
So Donna and I continued with our busy Monday Morning.
The PT has Donna very busy. The PT enetered, and then had to go get the walker. When the PT left Donna looked at me and said, "I like her!" When the PT left she shook her head and rolled her eyes.
She took the much needed shower, and kicked me out of the bathroom. She brushed her hair, teeth, and put on her deodorant by herself. She had a little trouble with the toothbrush. (It was backwards) She quickly realized and turned it around. She did not have her glasses on, so I think that might contributed. The nurse came in, and asked if she felt better. She immediatley answered, "Oh yeah."
She was very clear in asking for Louie today! We have had lots of nurses, cna's, cleaning crew, etc with family in California today. So that has been a topic of discussion. Donna said, "What is Louie doing in CALIFORNIA?" That was a great stride because she was able to complete her whole thought. She also tried to tell one of the nurses about Shaver Lake. She got Shav out, and then had to think some. She also talked about her kids, and said they are in their 20's.
I left her in the hands of her dad. Lunch had arrived, and then she wanted to take a nap. We had a very busy morning.
The PT has Donna very busy. The PT enetered, and then had to go get the walker. When the PT left Donna looked at me and said, "I like her!" When the PT left she shook her head and rolled her eyes.
She took the much needed shower, and kicked me out of the bathroom. She brushed her hair, teeth, and put on her deodorant by herself. She had a little trouble with the toothbrush. (It was backwards) She quickly realized and turned it around. She did not have her glasses on, so I think that might contributed. The nurse came in, and asked if she felt better. She immediatley answered, "Oh yeah."
She was very clear in asking for Louie today! We have had lots of nurses, cna's, cleaning crew, etc with family in California today. So that has been a topic of discussion. Donna said, "What is Louie doing in CALIFORNIA?" That was a great stride because she was able to complete her whole thought. She also tried to tell one of the nurses about Shaver Lake. She got Shav out, and then had to think some. She also talked about her kids, and said they are in their 20's.
I left her in the hands of her dad. Lunch had arrived, and then she wanted to take a nap. We had a very busy morning.
BIG Thank YOU!!!
I just want to say a BIG Thank you for all the cards and well wishes!!! Donna was really fascinated with the Great Big Card that she recieved today from some students. She is also really enjoying the animal cards!
Keep them coming!
Keep them coming!
It's Monday - and the work begins
Kylie (my daughter) spent the night with Donna last night and is still there this morning. She has lots to report - I mentioned before that the catheter is out but moving around, getting up and down is quite difficult for Donna, so there have been accidents. We think she is waiting too long to start getting up and then uh-oh it's too late. Well, that will probably take care of itself soon because Physical Therapy just put her through a workout. They made her walk down the hall (I gave her rides in a wheelchair because she refused to walk). She used a walker and made it 90 feet. Whoo hoo ! They are bringing her own walker to the room today so she can practice all she wants.
They also showed Donna (and Kylie) some leg exercises to be done as much as possible and Kylie says Donna does NOT like to do them at all ! ! ! While yesterday was a lazy day - they are not going to let her lay around in bed today. She must be sitting up in her chair at least 2 hours and the best news yet - she gets to take a shower ! ! ! We are all ever so grateful for this as it's been two weeks now and she is stinky! (Just kidding, she's had sponge baths but nothing like a good hot shower to make you feel like a new woman !)
When the PT asked her - What's your husband's name - she proudly answered LOUIE ! When asked what her name was she had to think and answered Kylie, who happened to be sitting right there. Maybe next time. By the way, she is really enjoying the pictures and often she is able to tell us the names of most of the people in them. Thank you all for sending the photos, she looks at them several times a day.
Physically as I mentioned, she is very weak and she complained a lot yesterday that it just hurt to move around. Although, I'm not sure where or what hurts as she couldn't say. (I think she sat in bed too long and needs to get up and moving to work out some of the soreness.) Her right foot is speckled with red dots and what looks like red bruising and it may be sore to walk on it. The doctors say that it is some of the infection/bacteria working it's way out. She continues to receive antibiotics via the central IV line in her right shoulder area - so they plug her in and when it's through they take it off so she can move around freely. She is still taking the drug to regulate her heartbeat and they had quit giving it via IV and tried pills instead. Apparently it's not doing the trick as the doctor said her heart is changing patterns so they are back to administering it via the IV. (As Joseph, my husband, had heart valve repair and Donna had heart valve replacement, I'm somewhat familiar with all the procedures following this type of surgery. I remember the same thing happened to Joseph - the fluctuating heart and it kept it up for about 3 months then finally settled in to a good strong, regular rhythm. So don't worry, the doctors are not alarmed and say it's all part of the healing process.)
Right now she is sitting in the recliner, waiting for the speech therapist to arrive and then that long awaited shower!
They also showed Donna (and Kylie) some leg exercises to be done as much as possible and Kylie says Donna does NOT like to do them at all ! ! ! While yesterday was a lazy day - they are not going to let her lay around in bed today. She must be sitting up in her chair at least 2 hours and the best news yet - she gets to take a shower ! ! ! We are all ever so grateful for this as it's been two weeks now and she is stinky! (Just kidding, she's had sponge baths but nothing like a good hot shower to make you feel like a new woman !)
When the PT asked her - What's your husband's name - she proudly answered LOUIE ! When asked what her name was she had to think and answered Kylie, who happened to be sitting right there. Maybe next time. By the way, she is really enjoying the pictures and often she is able to tell us the names of most of the people in them. Thank you all for sending the photos, she looks at them several times a day.
Physically as I mentioned, she is very weak and she complained a lot yesterday that it just hurt to move around. Although, I'm not sure where or what hurts as she couldn't say. (I think she sat in bed too long and needs to get up and moving to work out some of the soreness.) Her right foot is speckled with red dots and what looks like red bruising and it may be sore to walk on it. The doctors say that it is some of the infection/bacteria working it's way out. She continues to receive antibiotics via the central IV line in her right shoulder area - so they plug her in and when it's through they take it off so she can move around freely. She is still taking the drug to regulate her heartbeat and they had quit giving it via IV and tried pills instead. Apparently it's not doing the trick as the doctor said her heart is changing patterns so they are back to administering it via the IV. (As Joseph, my husband, had heart valve repair and Donna had heart valve replacement, I'm somewhat familiar with all the procedures following this type of surgery. I remember the same thing happened to Joseph - the fluctuating heart and it kept it up for about 3 months then finally settled in to a good strong, regular rhythm. So don't worry, the doctors are not alarmed and say it's all part of the healing process.)
Right now she is sitting in the recliner, waiting for the speech therapist to arrive and then that long awaited shower!
Sunday, February 1, 2009
Sunday evening
Donna is my younger sister, we're 14 months apart. Even when we were little everyone thought she was the older one and I always hated that ! But not for long, the older I got, the better I liked it. Tonight the nurse guessed that Donna was the older sister, she thought Donna was 3 years older than I am. Oh yeah, some things never change! I'm still chuckling but Donna didn't catch the humor in that moment. She's making great progress but she just needs a little more time.
This evening we turned off the tv, closed the blinds and for once the nurses left us alone for a while. We had a lovely time just talking and catching up. It was almost like we were having a slumber party and we laughed a little, cried a little. ate a little, slept a little and wore ourselves out. I believe she wanted to hear the story again - what the heck happened to her and why she was in the hospital, what about her job and what is happening to her now, when will she be better or will she? Of course, I was guessing at a lot of this. She quickly told me that she wore a size nine shoe but is still having trouble understanding everything people say to her. That's because they all talk to her way too fast (even in the south we have people that talk too fast, believe it or not !) and she gets very frustrated when she is trying to tell something but just can't quite get the words out. Everyday brings her closer and closer to being able to finish her sentences. All of you who know Donna know she is darn smart and boy can she fool people. She always answers when asked a question and they think she is "getting" it but that's not always the case. We tried to give her paper and pencil but it's not quite time for that because she wrote something that only she knows what it says. So, I told her about that new book - My Stroke of Insight - and I think I'll take it to her tomorrow. If you haven't had the chance to read this one, it's very interesting and helps to explain about what is most likely going on with Donna right now. I won't apologize for what I am about to say - I'm going to tell you how the story ends - the author recovers from her stroke. It takes some time but she recovers and so will Donna !
This evening we turned off the tv, closed the blinds and for once the nurses left us alone for a while. We had a lovely time just talking and catching up. It was almost like we were having a slumber party and we laughed a little, cried a little. ate a little, slept a little and wore ourselves out. I believe she wanted to hear the story again - what the heck happened to her and why she was in the hospital, what about her job and what is happening to her now, when will she be better or will she? Of course, I was guessing at a lot of this. She quickly told me that she wore a size nine shoe but is still having trouble understanding everything people say to her. That's because they all talk to her way too fast (even in the south we have people that talk too fast, believe it or not !) and she gets very frustrated when she is trying to tell something but just can't quite get the words out. Everyday brings her closer and closer to being able to finish her sentences. All of you who know Donna know she is darn smart and boy can she fool people. She always answers when asked a question and they think she is "getting" it but that's not always the case. We tried to give her paper and pencil but it's not quite time for that because she wrote something that only she knows what it says. So, I told her about that new book - My Stroke of Insight - and I think I'll take it to her tomorrow. If you haven't had the chance to read this one, it's very interesting and helps to explain about what is most likely going on with Donna right now. I won't apologize for what I am about to say - I'm going to tell you how the story ends - the author recovers from her stroke. It takes some time but she recovers and so will Donna !
Donna is on the move..............
Sorry it took so long to get back to this, yesterday was a busy day. When we arrived at the hospital we found Donna busily folding LAUNDRY ! She had a whole stack of towels and washcloths that she was working on. I asked if she was doing her "chores" and she smiled and agreed. (The nurse said she was very fidgety so they thought she might enjoy doing "something" ) Soon they brought lunch and she wasn't wild about the selection they brought - cottage cheese, fruit and vegetable soup but she ate some then pushed it away. While she was eating Eric arrived (not her son) to take her to a new room. Yep - it was time to Step-Down and that's a good thing! So, now she is in a "regular" room, with it's own bathroom, extra bed (where I slept last night) recliner and all the comforts of home - almost. More good news - they took the catheter out and all she has left if a central line which is on her chest. This allows the nurses to hook her up to antibiotics twice daily but she doesn't have to stay connected all day. Hooray - Donna can now move around on her own. She is weak but with help is able to get up out of bed and make it to the bathroom, with lots of help. Last night we went for a ride - in a wheelchair. She didn't feel like walking so we explored the hallways, looking at other patients, bulletin boards, out the windows and so on. She had a bad case of cabin fever and needed to get out of her room for a bit. We had to be careful not to get too far out of range for the heart monitor that is attached to her. Good news is that the monitor is portable, bad news is that it has a limited range. We must have been within the boundaries because they didn't call a code blue on us, which they do if you go too far !
Today finds Donna resting more. Yesterday was a big day and today she just wants to stay in bed and doze. That's okay, it's a lazy Sunday afternoon and a nice nap sounds perfect. Tomorrow is Monday and it will all begin again - the physical therapist and speech therapist will arrive and continue to push her towards recovery.
By the way - her cards are getting quite the attention, there are so many of them. She's enjoying all the pictures everyone has sent too. Her room number is 2424 at Baptist East Hospital, on Walnut Grove Road. When asked, she often doesn't want to talk on the phone so it's probably best not to call and just let her rest.
Today finds Donna resting more. Yesterday was a big day and today she just wants to stay in bed and doze. That's okay, it's a lazy Sunday afternoon and a nice nap sounds perfect. Tomorrow is Monday and it will all begin again - the physical therapist and speech therapist will arrive and continue to push her towards recovery.
By the way - her cards are getting quite the attention, there are so many of them. She's enjoying all the pictures everyone has sent too. Her room number is 2424 at Baptist East Hospital, on Walnut Grove Road. When asked, she often doesn't want to talk on the phone so it's probably best not to call and just let her rest.
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